Monday, November 3, 2008

The Tiger - Sarah
The Barbie - Katelyn
Barbie and the Tiger
Rapunzel? More like the Tired and Fussy Baby!
A Scary Skeleton, the Tiger, a Cowboy and Barbie after several hours of trick or treating!
We had a lot of fun Friday night. Stacy and I took Katelyn, Sarah and the Cowboy out to collect candy and tromp through yards. LizBeth stayed indoors with some friends. She received her first RSV vaccine Friday afternoon. Stacy said she was not really a happy camper after that.

Our visits in the City were pretty good. Genetics could see lots of improvement. We are scheduled to go back in about a year. The ENT thought she looked great. We have scheduled a Swallow Study for November 11th just to make sure little sister isn't silently aspirating. She's starting to eat more "solid foods" now. Neurology was a bit of a downer. She couldn't see a tremendous amount of improvement, but still doesn't know what could be causing it. LizBeth unwillingly gave a blood sample from her ring finger to check for enzymes in the blood. This test was run to see if more tests needed to be run before next year. We haven't heard anything back at this point. She was so tired. By the end of our visit, she refused to cooperate or smile. She slept until Woodward, then demanded to be fed. She hasn't used the tube in over a week! So far, so good. She sleeps a lot better at night now too. That means Stacy and I do as well!

Katelyn decided she was tired of Sarah today. Sarah decided that Katelyn was the meanest sister in the world. It was a real joy right after school today. Now they are outside playing together as if they are the best of friends. I missed out on this Jekyll and Hyde relationship with my sister. If I had fought with her, it would have been called child abuse. (There's almost 17 years between us.) My brother is 18 years younger than me, and he didn't actually like me until he turned five. Anyway, your family is unique to you. I love my family; the whole bunch!

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