Has it really been 5 months since my last update? I cannot believe it. Well, let's bring everyone up to date:)
Lizzie is 2 years old now! We are so thankful for birthdays around here. She is still very hypotonic, but has a great immune system and her vision is improving. She can definitely hear and vocalize, but no words consistently yet. She is eating like a little pig - still mainly baby food texture. Her favorites seem to be KFC mashed potatoes and Stacy's pancakes. We are planning on going back to OKC to see a new Neurologist and to meet with an Opto Neurologist, and also swing by the Ear, Nose, and Throat Doctor. We've met the Neurologist once before. In fact he recommended the last round of testing Lizzie had. (Everything normal there.) We've never been to the Opto Neurologist, but Lizzie's eye muscles are still really weak. Her vision seems to be fine, but she has the hardest time focusing and maintaining muscle control. And the Ear, Nose, and Throat Doc will hopefully stitch up Lizzie's stoma from her trach. She is still making whale communication sounds with it from time to time:)
Lizzie is still one of the sweetest babies ever. She is so pleasant until it's time to eat! She has a stander on order that we are really excited about. We are using an "ancient stander" to help her now and she tolerates it pretty well. She can stand for about 10-12 minutes before she melts down. Liz is fully supported while standing, but must hold her head up by herself. She has these tiny baby splints for ankle supports. It's one of those cute, but sad things she has in her life.
The rest of us are doing well. Katelyn is in volleyball now. For the most part she likes it... sometimes. Sarah is too young for volleyball, but is into everything else:) They are still Lizzie's favorite people.
It will take many days of consecutive posting to bring you up to date. I will stay with it this time. God has blessed us way too much for me to remain silent. In the NICU, Stacy and I promised to give God the glory in everything: life or death. Now that Lizzie is alive and improving, the normal everyday life has made me lazy. No more near death episodes each day. No more twice a month trips to the City. Improvements each week. God is so great! He is so faithful and true. All three Ross girls are the most precious gifts from a loving God we could have. And His people that pray for us are such blessings as well. Your words to me bring encouragement, but your words to Him keep us going. God bless you all:)
1 comment:
I'm so honored to have you as my cousin. Keep updating when you have the time...I love hearing about your sweet family.
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